When AI Becomes the Advocate a Family Never Had
Some of the AI stories that stay with me are the ones where the tech fades into the background and the human problem is all you see.
I read a CNBC piece about a mom named Nasha Fitter, whose daughter was diagnosed with FOXG1 syndrome, a rare genetic disorder. After that, she got dropped into the kind of chaos a lot of families know too well: scattered information, confusing medical records, insurance fights, and no clear path through any of it.
So she helped build something better.
Her company, Citizen Health, is creating an AI advocate for rare disease patients. In plain English, it helps families make sense of records, deal with insurance appeals, find relevant trials, and learn from other patients dealing with the same condition.
Parents in these situations can spend more than 50 hours a week on care beyond normal parenting. If AI can give even some of that time and energy back, that matters. It can make a brutal situation feel a little less impossible.
That’s the kind of use case that sticks with me. When the point isn’t the technology. It’s helping people feel less lost.